Friday, 20 July 2012

Ignorance is bliss?!?!?

I have to admit since summer vacation has started my son almost seems like a whole new kid. I'm assuming it's because he has more freedom's then he would during the school year. Sleeping in, the change of pace of school work and and just a general, one day at a time lazy day out look.

I did notice that yesterday after not getting much sleep the night before, when he started to loose at a game he was playing with the daycare kids melt down city was his destination. I was able to cut it off before the situation escalated.

I do have to say though that I recently had a conversation with a family member in regards to what has been going on with my son and have now realized that I will forever being facing ignorant people. People who believe that these children are a result of *today's society*, you know where kids are basically spoiled little brats (or at least my kid is (their words, not mine) and there is really nothing wrong with them that a little discipline wouldn't fix.

Not only was I insulted that parenting was called into question by someone who really doesn't have much a leg to stand on, but my heart also broke for my son as I realized he will continue to face this attitude by many through the years.

As a parent of a beautiful little boy who is wired a little differently, I beg of you to please refrain from judging the next time you see a child from this perspective. The reality is you just never know. These are bright, caring, loving children who deserve just as much love and respect as the next child.

Wednesday, 6 June 2012

Arrrrggghh.......

SOMEDAYS!!! Do any of you ever feel that way?!?

Man, has my son been pushing it lately.

I had a message on my machine last Thursday after getting out of the shower letting me know my son had quite the morning and had been sitting with his teacher and principal trying to get him to come back down and centered. It had gotten so bad that they were contemplating evacuating the classroom. She also advised me that she had indicated his use of video games and lego would be non exsistant. She wanted me to know so I could back that up at home.

I my son's teacher back on her cell phone (I'm grateful to have the kind of relationship with her) only to find out my son was sitting inside at the very moment on his recess working on questions he was suppose to have done that morning. Not only did I assure her I would back her up, but i also asked if i could speak to my little culprit.

My son greeted me on the phone as though he was having the best day ever and let me know everything is just fine now. I let hiim know that even if it was fine now, it wasn't earlier and because of that he had lost use of his DS, the X Box and all his Lego. I continued to let him know that if his afternoon was anything like his morning he could kiss all things important to him good bye for the rest of the weekend. If I got a good report, he got everything back the next day. I got a text from his teacher not long after our phone conversation letting me know she had never seen a child complete his work so quickly and head out to recess. Funny how that happens, eh?

Lucky for him, the report was good Thursday after school. Before he hopped on the bus Friday morning, the same scenario was laid out for him. If I heard anything bad about his day - poof bye, bye all things important! Report came back well, Friday was a good day!

This week has been a nightmare. It might be because my husband is on afternoons this week and I have the kids by myself at night, but man is this kid pushing!

Homework. The last week he has to write is carnet de lecture. Basically 5-6 sentances in a book report format on the book the kids select from their library. He got one sentance down before he decided he had nothing else to say about the book. It was borning, he already knew everything, it was too hard, couldn't find his pencil etc etc. His attitude to boot, landed him in a brief time out.

Once he (and I) cooled down and decided that yelling was getting us no where, we opted to get one of the french books he had here and use that. Smooth sailing. Two sentances down, good to go!

This morning the attitude was wide open. I nicely said excuse me countless time to ensure he knew I didn't like the tone of his voice, or his need to whine at every given situation.

As I write this tonight, I have a very unhappy little boy who once again inisists that this book now too is boring and he has nothing to write. For the last 90 mins, there has been not much more communicated then *Do your sentances* on my part and then the above list of excuses on his part.

Now that I've taken away the DS - suddenly the book isn't so borning anymore! Two sentances are presently being put on paper. Again, funny how that works!

Thursday, 24 May 2012

Still no answers

So today was the day. The day we met with the psycologist, my son's teacher, and the principal of the new school he is to attend in September. Today was the day was sat and went through finding and recommendations.

The first hour or so was basically the results of testing she did. Checking for memory, fine motor etc etc. Im thrilled to say that although there are some area's that required improvement, he ranked average in comparing him to children within his peer group. There were many results as well which ranked him off the charts. The overall summary was that we had a very bright boy. Now I do have to admit that through parts of it I was distracted as I had to bring our 2 year old daughter with us.
I was thrilled to know that being in the french immersion program isn't hindering him and in fact because the testing in giving in English we have discovered that not onnly does he continue to thrive in FI, but is doing wonderfully in English as well.

Socially he is making huge strides as well. Where he used to play by himself at recess or follow the other kids around he is now joining in, participating and engaging in the play with other children. It was also noted that since taking his social skills class (*camp*) that he has come full circle in gym class. Participating more and not prone to often becoming upset if he isn't winning.

Perfectionism and anxiety are still huge for him. I am amazed however that he is very self aware. He was able to tell the psychologist that he knows and recognizes when he is starting to feel overwhelmed and can relate to what intensity it is at based on both physical and emotional feelings he is experiencing at that time.

Attention is also something requiring work. He fidgits, has a hard time sitting still, paying attention to conversations etc etc. Although there are under tones to ADD and/or ADHD there is a fair bit of confidence that this is not what we are working with.

How based on the attention concerns, level of intellegence and some other sign and signals we are now moving onto the next level. We will shortly be signing forms take it the next level.

We will have to wait until September but testing will proceed to see if he is sitting on the autism spectrum. From what Im gathering there will be extensive interviewing with parents. Time spent with the child and from there a 48 hour period with their feedback and thoughts.

Today has been an emotionally charged day. I laughed, I cried and I struggle to continue to know what the best thing is to do. I'm grateful for the amazing support staff we have as parents and my son is more then blessed to have in  his corner.

Wherever you go from here I will keep reminding myself it does not define who my son is, but provide the ground work in obtaining the tools he will need while growing into who he will become.

I love you buddy - more then I could ever put into words. You will always be you, my sweet little boy. <3

Thursday, 17 May 2012

Your never really prepared......

I think one of the toughest things about being a parent is trying to figure out if your doing the best thing or *the right thing*.

Another moment of self doubt is was thrown out there for me yesterday.

The psychologist who has  been working with my son at the social skills group called with her *assessment* yesterday morning. Turns out he's a poor sport (no surprise there!). They opted to coin the phrase *quitter* instead of poor sport as that term seemed to have little impact on him. At the beginning where he chose to be defiant and insistant on not participating, towards the end he would continue even if he wasn't winning. Big accomplishment in itself.

They also worked with him on personal space, which I can understand. I was a little thrown off was when she had noted the personal space was more so from wanting hugs as a source of affirmation from adults when did accomplish something that had previously caused him anxiety. I kinda get it, but it was her comment that followed which consisted of *he has a need for affirmation. Im not sure where it comes from as I don't know his history.* His history?? What history? He does something positive, he overcomes a fear we ensure we know how proud we are of him. Hugs, kisses, praise - positive affirmation. That's his history.

I was also taken a bit aback when she told me they ended up spending alot of one on one time with him. No, it's not a bad thing - but I think for us it was putting him a group setting, I wasn't expecting that he needed more attention and behaviour modification then the majority of the group. It's like having the big ol' reality flag waived in front of your face and forcing you to realize that the *problem* might be that much bigger then what was anticipated.

Anyway, end result is that he attend *specialized camp* through the summer and he go back to the class again come September.

Tuesday, 15 May 2012

The results are in.......

Tomorrow concludes my son's run of his social skills class. Im not sure what happens afterwards. I don't know will happen after that? If they provide you with input, results or a suggestion of continuing when they offer it again? I do know that my son is excited for the party they are having to wrap things up.

I had a moment last week where I questions myself, wondering if I had done harm then good. For *Character week* at school, on Friday a bunch of the glasses were putting together a little performance. This is not something our son enjoys doing. So to motivate him, I let him know a few days ahead of time that if he went to the gym with his class and sang at least part of the song Daddy would take him to see the Avengers on the weekend. We brought it up a few times before hand to prepare him, and all was good. Until Friday morning. He didn't feel well, didn't want to go. I got him out the door and all was good until the bus pulled out. I could see the panic in his face and tears starting in his eyes. I don't even remember what the conversation I had with him was, as all I could think was *what had I done*.

I came home and quickly called his teacher to give her the heads up. I'm fortunate she is so in tune with him as she had called back to let me know she knew the signs he was close to  melt down when he walked into the classroom and was able to calm him before it went any further. She was able to provide comfort to him by letting him know that if it got to be too much he could sit with her, or they could leave the gym and go for a walk. I let her know what my deal was with him and how bad I felt, feeling as though I had brought the panic on.

We had a great chat and I hung feeling re-assured he was fine.


Then, I thought - why not surprise him! So off my daughter and one of my daycare kids and i went. He was thrilled to see us, and I have to say I couldn't have been prouder.

He sat with his class the whole time and sang through the parts he was suppose to. His teacher was thrilled and gave him a huge hug afterward. He throughly enjoy'd the Avengers this past weekend.

May 24th is the day. I have a meeting with the psycologist to school to see what the recommendations are. Im both excited and nervous.

Wednesday, 9 May 2012

And the ball is rolling

I am pleased to say the meeting at the school went well last week. I felt much better about leaving certain questions unanswered before getting the full reason for the question being asked. We spent almost 2 hours with the board psychologist going through our answers, discussing our thoughts, providing our input and basically presenting our son to her through our eyes.

She spent the remainder of the day with him. She called me upon the completion of the day to let us know how her time with him went. The first block of his day seemed to smooth, the afternoon - not so much. She heard alot of *I'm tired* *It's too hard!* *I can't do it* - which as odd as it is to say, Im glad she saw it. Myles seemed to show his true colours which I firmly believe will help when heading down the road of diagnoses.

He's gone to his last two social skills classes which he has come home saying how much fun they are, but informed me tonight before he went that he was *kinda getting tired of camp!*. We have a few more weeks left, I guess we will see what the outcome is.

This past week or so has been tough. We've seen this complete transistion in our child again. For a few weeks he was doing his homework with no issues, getting ready when asked, not temper tantrums or meltdowns. It was almost like the calm before the storm. This past Sunday we spent 4 hours doing homework. Through outbursts, meltdowns and frustration (his and ours) we finally got the last bit of his language homework done and the 3 required sentances about his french book. Yup - 4 hours for that! Melt downs when it's time to go to school in the morning, negotiating a day off from school - you name it. I wish we knew what the triggers were and try to stop these times before they start.

The psycologist spent some more time with our son yesterday. There was a meeting with the school staff and the psycologists and they are now ready for the results meeting. Thursday May 24th we will meet with the psycologist and the school staff to discuss her findings and recommendations. That day can't come fast enough.........

Saturday, 28 April 2012

Im questioned out!

I'm finally done! Two booklets and 2 packages of questions later - I believe all questions have been answered as much as I could. I swear I could gather all the information I just put out (and answered the same question's over again) and write a book or a thesis!

I have to tell you for all the questions I could answer without blinking, there were just as many that I decided to leave blank or had to change my answer after much time spent over analyzing.

Does your child hate to loose? Umm, yup! If you win - you cheat!
Does your child feel the need for everything to be perfect? Yes!! If he can't do it right, he just shuts down!
Does your child pay attention to details?? He can tell you the name of almost every car every made and their specs

Does your child show a persuastion towards guns?? Ummmmm, he loves Star Wars! Ask him about real guns and Im sure he would draw a blank. His collection of Nerf guns and Light Sabers is not to be messed with. Watching my daycare kids and there desire to play with these items leads me to believe it's fairly normal for kids of this age.

Is your child afraid of strangers or being kidnapped - Yes! Yes he is. It's the doing of my husband and I. There was an attempted abduction a few weeks ago about 5 mins from where we live. Any kid who has heard even the slightest bit of the Victoria Stafford trail happening I believe is also afraid too!

I wish I knew what they were getting at with some of these questions. Im afraid of answering these without knowing for fear of creating an issue that isn't there. Yet I don't want to lack honesty either.

We are ready for our meeting this week, wish us luck!

Thursday, 26 April 2012

*Camp* as we call it......

So my son is  now into his 4th week of his social skills class. The first few times around were so much fun for him that he started calling it camp. We took it and ran with it - we now call it camp.

He came home the first day so excited to tell about the Easter crafts they had done and how much fun camp was. I was relieved! I realized this was much harder on me then it was him.

Then he came home last week, you could tell he had been crying. I sat him down asking how camp was. He told me he was having a rough time. Camp made him *mad*. I asked him what happened to which he informed me that they played musical chairs and he lost. He continued to tell me how everyone cheated. (Everyone cheats in my son's mind if he doesn't win). My heart was pounding. In one sense I was thrilled to know that the psycologists running this group had seen this side of him, the other I knew what we were in for.

I was bang on, the night was filled with melt downs, defiance and general frustration. I didn't push him to hard the next few days - letting him re-group and get back on track.

Then came going to *camp* yesterday. After I picked him up from the bus stop he informed me he didn't want to go to camp because he might have a rough time. It was boring and he didn't like playing with the kids there, he wanted to stay with the daycare kids here. I fed him his afterschool snack and let him know he had to go, there was no choice.

Again he told me how boring camp was when he got home. I asked him why, what was going on? I got a *I don't want to tell you*. I talked with him a little more and found out that they played a game with a *cake* and *two slices*. They had to run around the cake and the first person there got to slice the cake. I asked him if he got to slice the cake in which he told me no, I didn't play!

Are we making progress? I have no idea? Im guessing by his hesitation to go now that this group is doing what it's meant to which is fantastic, but hard all at the same time. I know we are looking at the bigger picture of things and I have to keep reminding myself of this.

The remainder of this week will be based on the filling out the booklets upon booklets of questions for his psych evaluation meeting coming up next week.

Monday, 2 April 2012

We are on our way.....

So here is where our story not so much begins, as it does continues.

As most of you know I have a bright, beautiful and *spirited* 7 year old son. Since he was a toddler he exhibted *quirks* that to us aren't anything more then a part of who he is. Things we've noticed:

- Aversions to certain clothing
- Covering his ears
- Epic melt downs
- Very smart
- Frustration
- Inability to cope
- Trouble making friends

Now through the years he has outgrown some of these things and we've always been fairly fortunate that we've had teachers who understand him and they way the world is viewed from his eyes.

His teacher this year has been instrumental. Through lots of communication, agreeing, and researching we are finally moving forward and hoping to discover just how he does view the world and how he can cope.

Now, we've always known that his world is a different from ours, and after having to take time to accept that his norm is not the same as ours we are prepared to move forward and find how we can make things *easier* for him.

He has been introduced to the CYC at school and is currently on an IEP program at school. This week he will start a social skills group. A group that will challenge all of his behaviours that aren't always so flattering and teach him how to deal with these in life and in the real world.

We also got home the psych package today. Pages and pages and pages of questions asking us everything from his weight at birth to how often he is sick and every known behaviour and traits he has exhibited over the past 4 weeks.

We are set to meet with the everyone May 1st, when all these forms are to be filled out and they will then continue on to to do a psych assesment through the school board to see if a diagnoses can be made.

So the journey begins.

As I write this through tears is my eyes I can honestly say I am relieved that this process is on it's way. I don't care about labelling my beautiful, sensative and loving boy. Our motives are to ensure every bit of ground work is laid for him in his educational career. So that we can ensure he always has what he needs to continue learning, striving and growing as he moves ahead in his schooling.

Tomorrow evening we break will be telling him about the social skills class he starts Wednesday. Wish us luck.